One of the reasons I started this blog was to share my thoughts and feelings about having special needs children, one with health needs and another with psychological needs. I hoped by putting these thoughts into words I might help someone else someday that is walking a similar road. Unfortunately, I don't do a very good job of keeping those updates coming when things are going so well.... Here is a long-overdue update about Bryson.
I heard a few weeks ago that the term, "Aspergers Syndrome" is no longer valid, and kids with those symptoms are now part of the umbrella of "High Functioning Autism". Doesn't really matter to me, the diagnosis a few years ago is what got him the help he needed, and getting him the help he needed made him higher functioning than I thought possible.
On October 13th, the day after his 11th birthday, he was officially released from his occupational therapy, having met all of the goals we created with his therapist, and no other new concerns or deficiencies presented themselves. We were excited and so proud of him for accomplishing so much in just over a year. He was sad about not going to therapy anymore, because he loved Tonja and loved learning and practicing his new skills. She gave him an hour of undivided attention and listened to him talk (greatly encouraged him, really) about his day, his worries, his successes, and his preferences as she worked on strengthening his muscles, balance and coordination. It was kind of hectic for me, going every other Wednesday for over a year, but Bryson and I really enjoyed our alone time in the car driving there and back for each appointment. Sharing that time together was pretty special for both of us and we loved to talk about and celebrate his successes (always with an Arctic Circle ice cream cone on the way home).
This TumbleForm "Swing" was one of Bryson's favorite things. He nicknamed it "Tumbleweed" because it reminded him of a horse and he tumbled from it often! He also loved throwing the medicine balls into the small trampolines to play "bounce back". He got pretty good at it and could catch the heavier one while standing on one foot. By the time he was released he had learned how to tie his shoes (again), throw and catch with one hand, and how to skip, hop, and climb. He climbed up a rope ladder and a rock wall, and loved being up so high. (He was so afraid to climb even 2 feet off the ground when he started his therapy.) It was absolutely amazing to see the confidence grow in our little boy in just a year. I think being successful and getting stronger, plus having something to do that was all about him, was so good for him. Tonja always talked with me, too, giving suggestions with his sensory issues, resolving the frustrations at home, and offering new ideas for school and homework. She said once that she loved having him for a patient because his parents were engaged in his development and his therapy continued with us at home. Why would we not follow her suggestions and reinforce her teaching? Oh, how we love Tonja, and will be forever grateful to her for teaching us what to do to help our sweet, special son. He's a different kid than he was a year ago...confident, comfortable, successful, and even happy!
We also love our special eduction teacher at his school, Mindy. Like Tonja, she does her job with such loving care and concern that it doesn't even seem like she's doing a "job". She called me a couple months ago because she was concerned about Bryson's math scores, and we met for over an hour to talk about that and some frustrations with homework we were experiencing at home. (Because of his diagnosis, he has an IEP and accommodations at school to give him the added support he needs to be more successful. He attends a charter school whose philosophy is that when children are in a safe environment with accelerated learning opportunities, they will rise to the challenge and excel. It's a philosophy that works, even for kids with learning challenges. He still struggles at school, but is getting the help he needs to understand concepts and actually catch up to where he should be.) He was struggling specifically with the tasks of completing his 12 or 13 math problems each day and putting his spelling words in ABC order. It just took FOREVER...(like until bedtime). Well, we went back our 3rd and 4th grade method of having his math problems transferred from the book to the paper for him, as it seems that he was getting lost between the book and his work several times for each problem. And I think she's brilliant with the alphabetical order thing.... Bryson is a tactile learner. If he can manipulate it, he gets it. So, deciding he could show his understanding of the concept with 10-12 words just as easily as with 20, she started making him 10 word cards for him to manipulate until they're in order and then just write them down in a list like he has them placed. Pretty smart, huh? I never would have come up with that! Anyway, he also goes to early morning study hall at 7:15 three days a week to have someone help him correct and fix his math assignments. These accommodations alone has reduced homework time from 4 hours (not kidding) to about 1, and he works independently at his desk in his room, is self-motivated, successful, and again...happy!
I am so grateful for the people in my sweet boy's life that have helped us help him. I can't imagine how frustrating life would be to have a brain that processes things differently from the rest of the world (or so it seems) and not be able to understand why things are so hard and uncomfortable all the time. Oh, how I love my sweet little angel boy, with his happy, forgiving, loving disposition. And how grateful I am to have found help through the suggestions of loving teachers, doctors, therapists, friends and family.


It's great to have wonderful people in your life to help you when you need it. I'm glad Bryson is doing so well. I'm sure it helps that he has a kind and patient family who loves him!
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