Today actually started in the wee hours of the morning. Sarah spent most of the night being awakened every hour or half hour for uncomfortable things to help prepare for her colonsocopy. After morning vitals, we were visited by the oncologist (the doctor doing the bone marrow aspirate) and she said she'd see us at 1:15. We were obviously confused, since we had been preparing all night for tests at 7:30 a.m. They were planning to run them together since she'd already be under anesthesia and in the OR. They had originally scheduled them separately, then together in the morning instead, and somehow didn't get the message to oncology. In looking at the schedule, the teams decided the later time worked better for them. We were beyond frustrated with the inconvenience and stress this caused Sarah (not to mention serious lack of sleep, and no food or drinks now til afternoon). I expressed our frustration to the poor innocent nurse and resident, and then realized that it was already decided, and there was not much to do except be positive and try to help her cope. We passed the time pretty well with a morning nap, a visit from Aunt Kathy (Steve's sister) and a game of doodle dice. Before we knew it, the time had come.
All Sarah remembers is talking with the anesthesiologist, getting some "relaxing" medicine, and telling me goodbye. The next thing she remembers is waking up in her room, 4 1/2 hours later, feeling sleepy, but pretty good. Even though it makes her a little weepy, versed is a pretty great amnesia-inducing drug! The procedures actually only took about an hour and a half, and all went well. There will probably not be any results for about 48 hours, but she handled them beautifully, and the doctors were able to collect all the cells and biopsies, and see everything they needed to. She is pretty comfortable and now receiving a broad-spectrum antibiotic in her IV while we wait for answers. (No reason to sit around wasting any more time, huh?) Hopefully, by Friday we'll have the answer to this puzzle that has been so aggravating these past few weeks. I'm frankly a little nervous about the results of these tests. I'm scared that they still won't find the answer to her inflammatory markers and mysterious fevers. When I decide to be positive and hope that they really will solve the puzzle with these tests, I'm kind of scared of what they will find. I know that's the goal, and what we've all been praying for, but the unknown is not something I'm very eager to face head-on these days.
Steve is home with the kids, being a daddy, mommy, and candidate, catching up on the last 3 weeks away from home, and putting together Halloween costumes and a City Council campaign. Mom has helped a lot after school, and continued being the wonderful Grandma she is. The kids are so happy to have him there, and as much as they need him, and he needs to be there, it was so hard today to be apart. Sure hope we don't have very many more of these "hard" days ahead.
Today Sarah is grateful for anesthesia and for good doctors that know what they're doing. I'm thankful that there were no bad surprises or complications and that it's all over for another day. I'm also thankful for our family and all the wonderful things they're doing for us to help us through this tough time.
Today we learned that just because a day starts out bad, it doesn't mean the whole day has to stink. Today ended up being a pretty good day, thanks to our Father in Heaven for sending (in various ways) the comfort and love He has promised.
No comments:
Post a Comment